I don’t want to go through this

Storyline: Thinking in Autumn Colours 

From the horse’s mouth

Thu Sep 16

The MRI results are in. Like all the other tests I’d had, the results were negative. Sigh. “Now what?”, I thought. I wished I hadn’t asked. I’ll be given a spinal tap on Monday (the 20th). Continue reading “I don’t want to go through this”

I’m a conundrum

Storyline: Thinking in Autumn Colours 

From the horse’s mouth

Sat Sept 11

The weekend ENT (ear, nose, throat) doctor came by on his rounds and gave me an update. Here’s what I texted Diana after his visit: Continue reading “I’m a conundrum”

Investigation begins

Storyline: Thinking in Autumn Colours 

From the horse’s mouth

Tuesday September 7 was mostly a blur. I was given more saline, but I wasn’t much with it. At one point I was told that I’d be getting a CT scan. Radiology was just down the hall and I followed a PA (Patient Assistant) to the waiting room. Continue reading “Investigation begins”

Decline and fall

Storyline: Thinking in Autumn Colours 

From the horse’s mouth

If you remember from the previous post, we finally headed out for a long-awaited road trip. The first week or so went according to plan. Continue reading “Decline and fall”

Setting the stage

Storyline: Thinking in Autumn Colours 

From the horse’s mouth

In 2017, I was 63 years old, enjoying life both at home and at work. In fact, I was enjoying my work more than any time in my almost 40-year career. Continue reading “Setting the stage”

I can’t sleep

Storyline: Thinking in Autumn Colours 

From the horse’s mouth

 

I can’t sleep. It’s 12:45 am November 17, 2021 and I can’t sleep. I did sleep. For about an hour and a half. Then I woke up to go to the washroom and now I can’t sleep. Continue reading “I can’t sleep”

Regimented lives

Storyline: Thinking in Autumn Colours 

“So, you can’t swallow even your meds!?’ Lugo, our neighbour across the street, seems shocked by the discovery. On a lovely November afternoon, we sit on our front porch, Continue reading “Regimented lives”

I feel different this morning!

Storyline: Thinking in Autumn Colours 

“I feel different this morning! I feel good. My head is clear. The cloud following me around is gone.”, Alex announces coming down the stairs after his morning wake-up routine.” Continue reading “I feel different this morning!”

Out with Doranya and a G-tube feed

It was a lovely autumn day, a year since we last were in Kleinberg with Doranya. And exactly 3 weeks after Alex came home from the hospital with a G-tube Continue reading “Out with Doranya and a G-tube feed”

Why Thinking in Autumn Colours?

Storyline: Thinking in Autumn Colours 

 “Season of mist and mellow fruitfulness…” (J. Keats)

There are many reasons we started this storyline – Continue reading “Why Thinking in Autumn Colours?”

What about Doranya?

Storyline: Thinking in Autumn Colours 

After the mad rush home, I parked Doranya in our driveway and for a few days forgot about it. It stayed completely abandoned for about 2 weeks. Continue reading “What about Doranya?”

Life as a wild joker

Storyline: Thinking in Autumn Colours 

Life is a savage joker. One day you are on the top of a mountain enjoying the beauty of the waters below with twinkling sunrays’ sparkles and crags reflections. Continue reading “Life as a wild joker”

Three teaspoons of clear chicken soup

Storyline: Thinking in Autumn Colours 

These days I cry my heart out. Tears are pouring days in and days out. Although we hope Alex’s swallowing can be fixed eventually, Continue reading “Three teaspoons of clear chicken soup”

The swing of 10 days at home

Storyline: Thinking in Autumn Colours 

Although today, October 16, is not his best day it is now 10 days since Alex has been home. Continue reading “The swing of 10 days at home”

Ontario Home Care sucks and I wanna quit

Storyline: Thinking in Autumn Colours 

No, not really but it for sure is overwhelming. In the hospital Alex had 3 shifts of nurses, 3 shifts of patient assistants Continue reading “Ontario Home Care sucks and I wanna quit”

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